I cant quite believe that i havent been on here since october, things have certainly been busy! We are home educating the older 2 children and have a bit of a bonkers toddler now!
Nick did his time in boots and bar and is now wearing them over night only. He took his first steps at the beginning of may but he made us wait another month before he started toddling confidently.
Now to watch him running around at 14 months old, he even enjoys kicking a ball about and playing in the sand at the beach, it is amazing to think of what he has been through. You wouldnt guess that every night we have to strap on his boots and click his bar into place.
Its also hard to believe that we came so close to loosing him with his hernia. He has a faded scar now which when you see him sitting down could easily pass as a wrinkle from where he has been sat down. All being said, he is doing brilliantly well and has not been held back at all.
Wednesday 15th october. After 10 weeks in full time boots and bar, at 21 weeks old nick had his second tenotomy.
We had to arrive at the hospital at 7 am. Nick was not allowed to feed after 4 am and was not allowed water after 6 am. At 9 am he was taken first of the day into surgery.
Seeing him getting put to sleep was gut wrenching. He cried as the mask was held over his face, he looked at us, arched his back and screamed. Then his eyes rolled and he was asleep.
He was down for about an hour then we were told we could go down to recovery to be with him. He was crying, but he had a feed and managed to fall back to sleep.
The consultant said all had gone well, his tenotomy seemed successful and he was cast nice and tight. We are to return in 2 weeks but they are hoping not to disturb the cast for the full 3 weeks.
Afterwards they are saying that he won’t have to do the full 12 weeks in full time boots and bar again, we will take it week by week.
Nick seems to be coping back in cast. He is rolling around and still slamming his feet down, I am scared of him cracking his cast!
Unfortunately I am back to the stares, the wispers and the assumptions that I have broken my babies leg. I hope that in time there will be a raise of awareness to stop random people assuming the worst. 😦
We took nick for his check up on Friday. His physio had a quick look, she was very happy with how well he is doing but still didn’t think his heel was moving down. We waiting around for his consultant to come and have a look.
The consultant has decided that what she will do is xray his foot under a general anesthetic. She said that if he needs another tenotomy she will do it all in one go but will xray first to be sure of positioning.
So we are to return next Wednesday (15th october) to arrive for 7 am. Nick is not allowed to feed after 4 am. He is due to be the first one in but I am still dreading having to see him hungry 😦 I am worried about how he will cope in cast again though the physio assured me that he will cope fine.
I am sad that this means he will be in cast when we are on holiday at the end of the month but I am relieved that this means that he will be out of cast for Xmas.
He is doing so well. Rolling over and trying to get mobile.
He has had a cold so I mixed some coconut oil with some eucalyptus oil to make a vapour rub which I put on his chest and around his nose. I also made some wet tissues out of kitchen roll using warm water and coconut oil which work brilliantly for wiping his nose and throwing away.
So, I haven’t updated as things have been somewhat busy here. Nick has been going through his developmental leap which has effected his sleep and he has been learning new skills. At 16 weeks and one day, on 10th September he rolled over and has just progressed further and further. On Friday 3rd October he was able to hold himself sat up. He had also learnt the art of blowing raspberries.
We are still applying dueoderm to his feet but generally he continues to tolerate boots and bar very well. I am not unaware of how lucky this makes me. Next Friday we return again to Stanmore. I am dreading his second tenotomy. With each developmental step forward I am dreading how angry he will be to be back in cast 😦
We headed off to hospital this morning having enjoyed our week off last week. The physio is really pleased with how nick is doing. He is tolerating the boots brilliantly. He even managed to roll over this week! It was Wednesday 10th September so just the day after he turned 16 wks and we were at my inlaws and flip, over he went just like that! I was so pleased that the bar and his surgery hasn’t held him back. I think daddy was disappointed to have missed it but it certainly made nanny’s day.
Unfortunately the physio has said nick will almost definately need another tenotomy. His heel is just far too high. She said that it will be when he is 6 months old and will be under a general anesthetic. That’s quite daunting for us but I believe there is no need for me to dwell on it. If I think about it too much I go into a panic at the idea of him back in casts for another 3 weeks, I just need to accept that this is how it needs to be and that we will get through it. I just don’t want him to be in cast for his first Xmas!
Other than that though all is good. We don’t have to go back for 4 weeks now and we are allowed to get his feet out for 2 hours a day which will be wonderful!
I have decided that I have too many things going on for one blog. I am creating another one specifically to focus on our home ed journey so that others can follow us and I can keep this one for my personal journey as a mummy recording my thoughts and experiences.
With this in mind, an update on nick. On Friday he was given a smaller boot, it would not fit when he first came out of cast due to swelling. The hospital are very happy with his progress in boots and whilst another tenotomy is not off the cards nor is it a certainty but they are happy enough that this week we do not need to be seen 🙂 we get a week off from hospital trips! 🙂
Wow what can I say?!
Friday 15th came and they made a decision to keep Nick in boots. He has tolerated them really well and is settled. His feet are a little sore but our gp was able to prescribe dueoderm patches with no bother.
We were able to take him on holiday in boots and bar which meant we could give him boots off time at the beach! He felt the sand on his toes and paddled his feet in the sea. I was so pleased as it had meant so much to me.
We are home now, and getting back into routine.
It’s not september but we are back to learning. Alana and Josh are doing their khan academy challenges and we have found several resources for us to use when learning to speak Spanish so that will begin this week.
Josh is learning geography by marking on a blank world map where different species of crocodile can be found around the world and Alana has continued over the summer to work on her project on the world wars. She even learnt about the occupation of the channel islands while we were on holiday.
I am looking forward to our first full term of home schooling and have a lot of plans and ideas to cover history, human body, geography, weather and seasons, science and Spanish. … including several trips out and experiences.
I will continue to blog our adventures. I also take photos along the way and get them printed for the children to write about and put in their folders. This allows them to build on their writing skills as well.