I am chuffed that nick has been able to recover from his surgery and return home still successfully breastfeeding. This week he is doing a lot of cluster feeding which is pretty normal for his 6 week growth spurt but on Saturday he didn’t give my boobs a rest for more than 30 minutes at a time all day! I was able to snack on oaty lactation cookies and fortunately had the support of my family to enjoy the day on the sofa enjoying lots of skin to skin and allowing him to nurse as and when he wanted to. No it wasn’t easy, and I am proud that I was able to do it!
You see I nursed my other son until he was 10 months old and I wish I had kept going longer, there was so little support for me then though! My daughter I was unable to carry on past 9 weeks or so. She got poorly at 6 weeks and was admitted to hospital, I was expressing while she was in there but I had no support or advice about how to increase my supply at a time she would naturally be demanding more so I was unable to keep up with her demands.
It occurs to me how difficult breastfeeding is and those of us who manage it should absolutely be proud of ourselves.
That’s not to say that formula feeding mummies should be belittled, ashamed or made to feel bad. We are all feeding our children and doing the best we can. There shouldn’t be any competition. Perhaps formula feeding mums need to come to terms with that more than breastfeeding mums do. It seems more common for formula feeding mums to feel the need to defend what they are doing and accuse proud breastfeeding mums of putting them down.
No parent should be putting anyone else down. But given the pain, the tiredness, the thirst and the hunger as well as the inability at times to get anything else done that nursing mothers experience, then they absolutely have every right to feel proud of their achievements.
This gallery shows our week in photos. I have included nicks xray from before surgery where you can see his bowel in his chest and the after xray showing air in his lungs once more. It shows the transfer from our local hospital to GOSH in the capsule…. Some of these pictures were so painful but I am glad that my husband took them as at the time everything was a blur. These pictures have helped me get my head around what happened…. as has reading his discharge summary.
After spending 8 days in GOSH we were discharged and got home yesterday. Nick is on renatadine for the next 6 weeks and then we will return to GOSH for a follow up clinic.
We are happy to be home and able to get back into a routine of no routine…. breastfeeding on demand, Co sleeping and lots of cuddles. We are also happy to be back into our cloth nappies with cheeky wipes as little man’s bum was starting to get sore in sposies. I have soaked the cheeky wipes with a little lavender essential oil and have used coconut oil on his bum and less than 24 hrs later it is all well again.
Having got home and feeling somewhat more with it emotionally I looked up the cdh charity to read up and learn some more. I have been disturbed to read that 50% of babies with this condition do not survive. This leaves me feeling so lucky I have a bit of a sick feeling inside. I don’t think I ever really realised the severity of the condition! Yet I am somewhat relieved that I didn’t have that knowledge at the time. I don’t think I would have held it together at all!!!
I am holding and cuddling my little boy that little bit tighter now I think!
Well, it’s been chaotic. As things usually are with a new baby especially when you have older children and school runs and uni exams etc as well. Just when I thought we were settling down, a small routine had been formed, final exam had been sat and first cast had been put on and the world hadn’t ended we were in for another shock.
Nicholas turned 4 weeks on Tuesday. In the early hours of Tuesday morning he refused to feed and started screaming. We tried winding him, changing him, pacing with him….. He would settle a little then scream again. At 4 am he vomited with bile in it. We didn’t panic too much as he had been so worked up and seemed to settle somewhat afterwards….. then at 7 am after a very restless night (zero sleep for me!) He vomited dark green bile. I dialled 111 and spoke to them I was told to call gp as soon as the surgery opened which I did.
I spoke to a crappy receptionist who helpfully informed me that it sounded like my baby had wind! Fortunately I ignored her and pushed on for the gp. Gp said I had 2 choices, take him straight to a&e or go to him first. I decided to see him first as otherwise I would be driving in rush hour and waiting to be seen….. Gp examined nick and called an ambulance. The rest is a bit of a blur. We arrived at watford general children’s resus room about 9:40 am. .. They set straight to work as by this point nick Could barely breathe. They ran tests and got him started on anti biotics. An xray then showed a diaphragmatic hernia and his bowel and intestines were in his chest squashing his lungs and had pushed his heart to one side. The CAT team were called and they arrived and made him stable ready to be transferred to GOSH the transfer took place at around 17:00 once he was sedated intubated and believed to be stable enough. Nick was taken down to surgery at about 19:40 and was down there for around 3 hrs. That was the longest time of my life!!
Fortunately the surgeon was able to repair the diaphragm, and though the bowel looked very pale once it was back in the tummy it all pined up well meaning no bowel had to be removed. Because he had been fine for 4 weeks his lungs were good and strong and his breathing tube was able to be removed less than 24 hrs after surgery.
So we are now here…… less than 48 hrs later we have left ICU and are on the ward. We are hoping to be able to start introducing food tomorrow if not tonight…. He has been far ting, has passed some poo and there is no green bile coming up his tube anymore. His recovery is truly amazing!